So when dealing with a congenital heart defect you have to keep things in perspective. So while this is really good news for us...it's not like they said "We were all wrong! Your baby girl has nothing wrong with her!" But they did say "your baby girl does not have a double aortic arch, she only has a right arch with an aberrant left subclavian artery". Which, when it comes down to it, is the best situation we could have hoped for. If you'll remember from the older post it just means they will have to cut the ligamentum arteriosum. But this is easier to fix than a double aortic arch, and it is less risky of a surgery.
We haven't been to see the cardiologist again, so we don't have a lot of details. Her surgeon has also not seen the results of the CT scan (CTA scan...it had contrast) so we will all sit down with the surgeons, the cardiologist and discuss exactly what we will be doing with the surgery. There is still a small chance that we will be going in through the front of the chest and they will be fixing her ASD. We just don't know at this point and we will be talking with the surgeon about our options with that.
The poor baby girl was such a trooper this morning and despite it taking them 5 tries in getting an IV line in for TWO HOURS and despite not getting to eat anything until after noon she was in good spirits tonight. She was breaking all the RN's hearts by crying "Why?!" in her saddest voice every time they poked her. She did so well and we are so proud of her!
We haven't been to see the cardiologist again, so we don't have a lot of details. Her surgeon has also not seen the results of the CT scan (CTA scan...it had contrast) so we will all sit down with the surgeons, the cardiologist and discuss exactly what we will be doing with the surgery. There is still a small chance that we will be going in through the front of the chest and they will be fixing her ASD. We just don't know at this point and we will be talking with the surgeon about our options with that.
The poor baby girl was such a trooper this morning and despite it taking them 5 tries in getting an IV line in for TWO HOURS and despite not getting to eat anything until after noon she was in good spirits tonight. She was breaking all the RN's hearts by crying "Why?!" in her saddest voice every time they poked her. She did so well and we are so proud of her!
Oh poor baby girl. Such a sad face she has. :(
ReplyDeleteSuch a sweet baby. Glad the news was the good instead of the bad. And good thing you posted this! Daddy sais "Oh, you weren't there when they found out!" He forgot to mention it to me! and I agree with Heidi....the sad face is heart breaking!
ReplyDeletePoor little thing. I hated reading that they had such a hard time getting her IV in. I bet THAT was super hard on Mommy and Daddy as well. Glad it was better then they thought though!
ReplyDeleteOur prayers are with you all.